#TBT to the time I was in the hospital last week and took a selfie when I was on a whole hell of a lot of medications haha. #selfie #fusion #ehlersdanlos #ehlersdanlossyndrome #eds #spoonie #hospital (at Doctors Community Hospital)

#TBT to the time I was in the hospital last week and took a selfie when I was on a whole hell of a lot of medications haha. #selfie #fusion #ehlersdanlos #ehlersdanlossyndrome #eds #spoonie #hospital (at Doctors Community Hospital)


Our wall. A few years ago I was 5’3 3/4”. I shrank to under 5’2”. Now I am over 5’4”! The only thing I’ll miss about being short is the fact that, when standing, I fit perfectly under @copeadopes’s chin. I’m going to be a giraffe after future fusions…

Our wall. A few years ago I was 5’3 3/4”. I shrank to under 5’2”. Now I am over 5’4”! The only thing I’ll miss about being short is the fact that, when standing, I fit perfectly under @copeadopes’s chin. I’m going to be a giraffe after future fusions…


Out and about for a little bit. IKEA! (at IKEA College Park)

Out and about for a little bit. IKEA! (at IKEA College Park)


I have the best family ever! Also I’m out of the hospital!!!

I have the best family ever! Also I’m out of the hospital!!!


Up and walking! I feel so much taller!!! (at Doctor’s Community Hospital)

Up and walking! I feel so much taller!!! (at Doctor’s Community Hospital)


Before and after of the bump on my neck/back. The first photo was about a month before my surgery. The bottom photo was taken six hours after my surgery.  (at Doctor’s Community Hospital)

Before and after of the bump on my neck/back. The first photo was about a month before my surgery. The bottom photo was taken six hours after my surgery. (at Doctor’s Community Hospital)


Watching Supernatural on the computer in my hospital bed, after visiting hours because were rebels!

I’m starting to get really hungry! Apparently I’m not allowed to try to eat until I’m evaluated by a speech pathologist who won’t be until tomorrow afternoon. All I’ve is ice chips!  (at Doctor’s Community Hospital)

Watching Supernatural on the computer in my hospital bed, after visiting hours because were rebels!

I’m starting to get really hungry! Apparently I’m not allowed to try to eat until I’m evaluated by a speech pathologist who won’t be until tomorrow afternoon. All I’ve is ice chips! (at Doctor’s Community Hospital)


Neck fusion surgery. Let’s do this! (at Doctor’s Community Hospital)

Neck fusion surgery. Let’s do this! (at Doctor’s Community Hospital)


It’s surgery day!

Now I’m starting to get nervous…


We’re marking the wall to see how much I grow after my spine surgery. The difference between my height without the neck brace and with the neck brace is pretty funny. It’s about an inch.

We’re marking the wall to see how much I grow after my spine surgery. The difference between my height without the neck brace and with the neck brace is pretty funny. It’s about an inch.


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